6-Year-Old With Disease So Uncommon It's Named After Him Perplexes Doctors After Surviving 36 Surgeries

Jul 18, 2019 by apost team

It’s a given fact that parents will do anything to protect their kids. When something goes wrong, we usually fall to our parents for comfort and advice to help us through hardship. But what happens when life has other plans and there’s nothing you can do to prevent health conditions from affecting your child?

Grayson Kole Smith was born back in February of 2013 to his parents Jenny and Kendal. His mother Jenny had two healthy pregnancies before he was born, and was expecting the same of her third reports The Daily Mail. She had no complications throughout the nine months, and she was awaiting the arrival of a healthy child. However, life had other plans for baby Grayson. When he was born, he was affected by numerous mysterious health issues that no doctor could have foreseen.

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Not only was Grayson blind and deaf, but he was born barely breathing. His eyes were so swollen that they were completely shut, and a large portion of his skull was missing. There was a hole in Grayson’s tiny heart, he had a curved spine, and other facial deformations that were considered extremely severe.

His case was so rare that it even stumped the doctors. They were unable to determine the direct cause of the health conditions, and despite performing DNA and genetic testing, the root issue was still unknown. After much research and time, the doctors decided that the disease would be named Grayson’s syndrome.

Despite being a newborn, the parents of Grayson had to hear the news that no parent wants to hear. Grayson was going to be transported into hospice care, and Jenny and Kendyl were advised to pray for the best, but expect the worst possible outcome. The parents, although shocked and horrified by the situation, even began planning a funeral for baby Grayson.

However, years went by and Grayson remained alive. Although he has undergone 36 grueling surgeries, he is now six years old and still alive. Now, the doctors are stumped as to why the boy continues to live despite all of his medical conditions and the odds of survival with his defects.

Despite his issues, his parents note that he is a happy little boy despite his pain. You can learn more about Grayson’s incredible story in the video below. What do you think about this boy’s rare condition?